My name is Cris. I am 27 years old.
I live in Canada, am married and have a 3 year old son named Paolo. I
love to read books and listen to music. My favorite author is Nick
Hornby. I like the way he writes because his stories are witty, funny
and they make me laugh. Though I am not a single, white, self-absorbed
male - I feel as though I connect with his characters. My sister always
says I think like a man, I guess that's it, or maybe Mr. Hornby and I
have a lot of things in common. No, I am not a die-hard Arsenal fan,
I'm barely even familiar with football. I like music too, but I'm not
as much of a Teenage Fanclub fan as he is. One thing's for sure,
something that we both have in common - he and I both have sons that
are autistic.
That doesn't explain much though,
about how I can relate to the characters that he's written. But it does
give a good segue to the next topic. In any case, to a certain degree,
I am self absorbed. To create a blog that talks about me and my own
life, requires a bit of being self-involved too.
So there you go. The thing with
Paolo, is...what can I say...overwhelmingly mindblowing - since we've
only gotten the diagnosis a couple of weeks ago. Not that it was a
total shock, no, we were prepared for it. As prepared as we can get.
But then again, when it's official - it kind of cements the fact,
chucking away all the other possibilities that it might just be a phase
or that maybe he's just pretending, and it's all a big joke. We were
just waiting for him to say, 'Hey, Mom, Dad, I can talk. Ha-ha. Fooled
ya!'. But then again, no, it wasn't the case. Oh well.
I asked the doctor if it was the
mild kind of autism, since he was interactive with only a few quirks
here and there. The kind of autistic kids that I usually saw were the
ones that didn't really respond to anyone, play with anyone and had
their own world. Of course, I don't have any other kids of my own to
compare him to. Since I don't naturally like kids myself, I didn't hang
out with much of them before, I didn't know how different he was from
other kids his age. She said 'No'. He's high functioning, that's the
term, but he's definitely within the spectrum of the Autistic Disorder.
And so begins our journey. To
therapists and new schools, behaviour consultants, doctors, social
workers and such. I was worried that my husband would take it bad.
Surprisingly, he was totally cool about it after it finally sank in.
There are a few perks, he discovered. Autism, being a disability,
Paolo's a tax break. We get disability credit and the government gives
us money for his treatments. He'll always be first in line since he's a
special child, and he gets his own one-on-one helper at pre-school, and
for free! Of course, there is the possiblity of him being a savant too.
We're both highly intelligent (ahem!), and he's definitely got our
genes in him. He did show a peculiar ability to remember how words are
spelled at an early age - knowing how to type more than 15 meaningful
words at age 2 ( the longest one is treehouse, which is of course, the
name of his favorite kiddie channel). Yes, we are going to introduce
him to playing cards soon, and then at age 21, Vegas here we go!
There was also a worry that had been
lifted that we were bad parents. He was a late talker, that was how it
all started. At age 2 he wasn't really communicating at all that well.
Who was to blame? Nobody else, of course, but the parents!Particularly
me. Why didn't I read to him when we was still in my womb? Did I talk
to him a lot? Maybe that's why he wasn't learning any language. Kids
his age were quite conversant. But Paolo stuck to his 'uhs' and grunts
and the frequent temper tantrums to get what he wanted. I felt kind of
guilty, that what I did wasn't enough. Now there he was - a child
unable to speak his mind and tell stories about his daily adventures
like any little old child could. Maybe it was because he wasn't exposed
to classical music when he was young. Was it my fault that he liked to
be rocked to 'I Wanna Be Sedated' when he was a small baby? He was
peculiar, and I stuck by him. I loved him the way he was - weird quirks
and all. He was and still is soo cute!
Paolo was different growing up. He didn't respond to people when they
called him by name. They thought he was deaf. I thought he was just
stubborn. My husband thought he was just too deeply concentrated in his
play. It took him a while to learn how to kiss and hug and call me
'mommy'. I felt hurt when he wouldn't automatically come to me when he
was scared, but would prefer to hide under the bed. He also tested my
patience by not recognizing if I was angry or not, even laughing at my
face when I was screaming at him.
We
took him to a speech therapist, hoping all his odd behaviour was just a
matter of not being able to speak. He improved a lot. However, a
recommendation by the doctor and the speech therapist to screen him for
autism, confirmed that it wasn't just his lack of language that was
causing this behaviour, but a genetic condition that has his brain
differently wired.
Usual normal behaviour isn't
something that comes naturally for kids with autism. They need to learn
it. That was the reason why he didn't reply if you ask him what his
name was or how old he was. He just doesn't understand that abstract
concept. Sometimes, if you get angry, he laughs. He doesn't know how to
read it. He's not capable of putting himself in your shoes or even
reading how other people feel. To most, this comes naturally, but to
Paolo, it's an all different concept.
He's improved since speech therapy
and constant reminders on what to do and how to respond to certain
situations, but still there's a lot of work to be done.
It's exhausting for parents, for me
and Rayms. We still both work and still have to worry about how we're
going to plan this all out. We try to discover de-stressers. I try to
enjoy myself with good books and music ( I stay away from heavy themed
books and depressive music) , he tries to indulge himself with his
passion for reading comic books and collecting Overpower cards (anyone
out there with a Mr. Fantastic IQ Hero card can contact me, that's the
only thing my husband wants for Christmas). There are movie nights too
- renting a DVD or two, for movies we missed watching in the theatre.
Paolo
has this peculiar habit of not wanting us to watch any other show
except the Treehouse channel. He's a little tyrant. Either you watch
his show or turn the TV off. It's hard when he complains, with his
whining and extremely painful kicking (he's unusually strong for a 3
year old - as we have been told), you're forced to succumb. We did have
a breakthrough though. We wanted to watch 'Shaun of the Dead'. We
waited till he fell asleep and popped it in the DVD player thinking
that the coast was clear. Suddenly, I heard him, he had awoken and was
demanding to watch the Treehouse channel instead. We stood our ground.
No, we will not be bullied by a 3-year old child! We are just two
people who would like to have a nice quiet evening, watching a zombie
movie. We felt defiant and unafraid. We are his parents after all ,and
it was time for us to stick it to his cute, whiny little face that we
will watch our own show and that will be that.
He cried 40 minutes into the movie.
I hardly understood half of what the characters were saying.
Nonetheless, we did not flinch. We were still winning. Even if we
weren't enjoying the film and it was hardly a nice quiet stree free
evening - we were still winning. And then it happened. He stopped.
Maybe he grew tired. Maybe he understood that his demands were going to
be fruitless. Yes, now he knew, he knew we were the bosses of the
house, the high ranking managers, the king and queen of the castle. We
had him wrapped around our fingers now! But then, something odd
happened. He laughed. He laughed like there was someone tickling his
belly. It was a hearty laugh, a laugh that he reserved for things that
were extremely pleasing or funny to him. It was at the point of the
movie where Shaun and his friend were brandishing a cricket bat and a
shovel, and started whacking the zombies on their heads.
Whack! Giggle. Whack! Whack! Whack!
More giggles. With every whack in the head, Paolo's giggles started to
increase with fervor. It was a funny movie, Rayms and I knew that. We
didn't laugh but just exchanged worried looks. I knew what was going
on in my husband's head, he was mentally saying 'What the f**k?!'. I
knew what he was thinking because it was the same thing that was going
on in my mind too. Paolo just continued to laugh his little head off.
Weird, really odd, disconcerting even, but at the same time still very,
very cute.
Here's a mental note, talk to the
behavioural consultant about aberrant reactions - particulary towards
violent behaviour. We really do have a long way to go.